The Go B Go Foundation was born from our journey with our son, Brady. Brady's diagnosis of spastic hemiplegic cerebral palsy came just before his first birthday in June 2022. At four months old, Brady wasn't moving his right arm and had little movement in his left leg. As months passed, it became evident he was struggling to reach developmental milestones. By six months, Brady was referred to physical therapy (PT) and occupational therapy (OT). Initially, doctors suspected a brachial plexus injury, but our new PT recognized neurological signs. In June of 2022, an MRI revealed Brady had suffered a perinatal stroke, likely during late pregnancy or birth, rather than a brachial plexus injury.
Upon receiving the diagnosis of Cerebral Palsy from the neurologist, we were engulfed in fear, facing an ocean of uncertainties. What is cerebral palsy? What will Brady's quality of life look like? Will he walk? Will he talk? Where do we turn for support? We immediately called Brady's physical therapist and together crafted a strategic plan for our son. As we delved deeper into the world of therapy and expanded our understanding of Cerebral Palsy, we learned of various therapeutic approaches known to yield remarkable improvements for children with neurological conditions.
We discovered a promising approach known as "intensive therapy". These programs involve concentrated daily sessions ("sprints") lasting one to three weeks and targeting specific goals. However, during our research, we found that insurance companies generally do not cover these intensives, leaving families to bear the entire financial burden, which can amount to thousands of dollars.
In 2023, Brady completed two intensives. The first intensive marked a significant milestone as he progressed from assisted steps to walking independently. The second resulted in substantial improvements in the mobility of his right arm and the functionality of his hand.
We feel incredibly fortunate that our entire family plays a vital role in Brady's rehabilitation journey. Through our experience, we recognized the need to enhance accessibility to life-changing opportunities like intensive therapies. Thus, Go B Go Foundation was born! Our mission extends beyond fundraising; we aim to raise awareness for children with diverse neurological conditions, ensuring they too can access the therapies they deserve. Together we can make this dream a reality.
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